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Ayushman Bharat’s digital mission aims to develop the backbone needed to support the country’s integrated digital health infrastructure. (Image: abdm.gov.in)
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ABHA will create an ecosystem that will fundamentally drive affordability and better health outcomes at a much lower cost and on a larger scale.
What You Need To Know About Healthcare Data And Privacy In India
The National Health Authority (NHA) announced on Friday the integration of its flagship Ayushman Bharat Digital Mission (ABDM) scheme with Aarogya Setu. With this, over 21.4 million Aarogya Setu users will be able to create unique 14-digit ABHA or Ayushman Bharat Health Account numbers from the mobile app. ABDM has generated 16.4 crore of ABHA numbers so far, which will help amplify it even further.
Indeed, Finance Minister Nirmala Sitharaman’s budget speech clearly states that the government’s approach to healthcare is now more geared towards the use of digital technology.
While the healthcare budget didn’t have big announcements, one of the few announcements was about launching the digital ecosystem around the rollout of ABDM. ABDM aims to develop the backbone needed to support the country’s integrated digital healthcare infrastructure, while the ABHA number is your healthcare ID, through which you can access and share your medical records, digitally. It will enable your interaction with doctors and allow you to receive your digital lab reports, prescriptions and other medical reports from hospitals and pathology labs.
Under this scheme, a mobile application for managing medical records will be the next most used app in the coming months. However, many of us still don’t know exactly how ABHA works. I’ll try to simplify it for you as we move forward.
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On your way to a doctor, carry bulky files containing your medical records and medical history; sharing those complete medical records and information becomes a challenge. The doctor may not get a complete understanding when scanning those physical documents, it is a difficult task. Imagine, if technology allows you to share your medical profile (past medical procedures, medications, diagnoses, allergies) in just one click. Imagine an ecosystem that gives you the control and flexibility of full or limited digital access to your medical history. This is what ABHA will do for you – keep all of your corroborated medical information in one place, whether it’s from your next clinic or the hospital you visited for a procedure.
ABHA will also provide physicians with accurate information to enable informed decision making when making a prescription. Patients (even in rural areas) can consult with doctors across India, thereby saving time, money and also getting faster and more effective treatments through ABDM’s discovery rails. Healthcare interoperability can reduce the total cost of care by reducing the number of unnecessary or repeat tests and helping doctors diagnose earlier. And all this will facilitate through secure, encrypted and completely private interfaces with user consent at the center. Think about how UPI has changed the way we pay today, ABHA will change the way healthcare is delivered.
ABDM will create an ecosystem that will fundamentally drive affordability and better health outcomes for all of us at a much lower cost and on a larger scale.
Overall, from an aerial perspective, health is at the heart of the Sustainable Development Goals (SDGs). Under the SDG goal, India aims to achieve “universal health coverage” that includes protection from financial risks, access to essential health services and access to safe, effective, quality essential medicines and vaccines. and affordable for everyone. ABDM will push India towards universal health coverage as the creation of ABHA is only a small part of the huge program that aims to bring together the entire health care of the country on a single platform.
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Moving forward, the health information gathered through the scheme will show improved data quality at the macro and micro levels that will help policy makers with advanced analytics and appropriate use of health biomarkers to deliver better preventive health care. It will also help in the decision-making process to inform, design and strengthen the implementation of health programs and policies. Data at purely anonymous levels will further strengthen private and public research structures to evaluate the effectiveness of various health programs and facilitate a comprehensive feedback loop between researchers, policy makers and providers.
According to a report by Invest India, the healthcare industry in India will reach $ 372 billion by 2022 and the digital mission will play a key role in driving momentum.
You won’t be surprised if I tell you that we don’t have enough doctors for every 1000 inhabitants. The burden on the medical fraternity, including nurses, is enormous and there is a shortage of doctors, especially in rural areas.
In a country like India, the second largest in population density, technology is the only answer to increasing access to health services at reasonable prices.
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According to the government’s vision, ABHA will bridge the gap between the different stakeholders of the healthcare ecosystem through digital highways. Innovations in storing and accessing medical information will appear to lead to better outcomes for care seekers.
While some other tech companies are looking to bring a revolution in the rapidly evolving arena of healthcare, at EkaCare we have created an ecosystem that allows patients to connect with verified doctors. EkaCare, one of the first companies to partner with the government in developing the digital interface to create ABHAs or health IDs and manage medical records, offers technology for a seamless browsing experience and medical record storage. As more and more people create ABHA, patients can connect with doctors via our app and share their medical records with one click.
Over a million ABHAs have been created through EkaCare so far, which clearly shows that Indian citizens are looking forward to joining the government initiative. It is an exciting time as India has just started experiencing the health technology revolution.
Vikalp Sahni is the founder and CEO of Eka Care (Connected Health). He is also an Aarogya Setu volunteer architect and Ex-CTO, co-founder of GoIbibo. The views expressed in this article are those of the author and do not represent the position of this publication. The issue of health data in India, both collection and protection, predated the concerns raised by privacy advocates when the Indian government introduced the Arogya App Set. Criticized for being a threat to user privacy, the app it was briefly mandatory, calling for disapproval from 45 organizations and more than 100 prominent personalities. Although the mandatory status was canceled, it was still applied arbitrarily. Furthermore, recent reports have shown that the app, despite its intrusive permissions, has failed to reduce the spread of the virus, thus violating the principle of proportionality (as well as legality) enshrined in the Puttaswamy Privacy Framework.
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The National Digital Health Mission (NDHM) and Health Data Management Policy (HDMP) and United Health Interface (UHI) have also received criticism and suggestions in part from relevant sections of the company. These problems do not stem from specific acts or policies, but rather from the lack of a comprehensive data protection bill that can meet our modern needs.
On September 27, 2021, Prime Minister Narendra Modi launched the Pradhan Mantri Digital Health Mission (PM-DHM). This PM-DHM launch coincides with the National Health Authority (NHA) celebrating the third anniversary of Ayushman Bharat Pradhan Mantri Jan Arogya Yojana (AB PM-JAY). On this occasion, we will examine how and where the scheme can impact and where it needs to focus.
Personal health data may include an individual’s data consisting of detailed information about their health condition and treatments. It may also include any data with personally identifiable information of interested parties, such as information about their healthcare professionals. On the other hand, non-personal health data are aggregated health data (e.g. number of covid cases) and anonymous health data in which all personally identifiable information has been deleted. It may also include information on healthcare facilities, medications, etc., which does not imply personally identifiable information.
The current legal framework governing the protection of electronic health data and sensitive personal data or information (SPDI) is covered by the combined readings of the Information Technology Act, 2000 and the Information Technology or Sensitive Personal Information) Rules, 2011. These offer only a limited level of protection to the collection, disclosure and transfer of sensitive personal data, including medical records and medical history. Current policies, which were once considered modern, have not been updated with advances in the field. Legislation has not kept pace with developments in e-health, especially when healthcare has transcended hospitals and clinics and manifests itself in ways as diverse as telemedicine apps. Such services existed even before Covid-19, but the blockade resulted in an increase in their popularity, as doctors could be consulted while they were at home.
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To move forward with the changing times, the government introduced DISHA (Digital Information Security in Healthcare Act) and the Personal Data Protection Bill, 2019 (hereinafter referred to as PDP). PDP makes some additions to what constitutes health data –
‘Data relating to the status of
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